Melanoma News Round-Up, May 24

The third week of Melanoma Awareness Month is coming to a close and we have so much news to share with you, but before we recap—check out what’s happening right now!

Today is Sunhat Saturday, a day devoted to the importance of wearing hats as sun protection.  Join us in celebrating Sunhat Saturday by sharing pictures of yourself, your family and friends wearing hats and you could be featured on our Twitter or Facebook! #SunhatSat

SunhatSat FB

Monday, MRA’s president and CEO, Wendy Selig, wrote It’s Time for the US to Catch Up on Melanoma Prevention for the Huffington Post.  Later that day, MRA announced the 2014 research grants, awarding a record-breaking $11 million to 19 institutions worldwide.  MRA also attended the GSK Summit where melanoma bloggers and thought leaders met to discuss new ways to engage with melanoma patients and how to make a difference.

Tuesday, MRA attended the BayBio briefing on Capitol Hill where Wendy Selig spoke about the importance of federal funding of medical research.  At 5:00 PM, the L’Oréal Paris It’s THAT Worth IT Thunderclap went live with over 2,500 supporters jointly broadcasting to over 7 million people about the importance of sunscreen and supporting MRA’s research program.  Later that evening, MRA’s Leveraged Finance Fights Melanoma event at Rockefeller Center in New York City raised an astounding $1.4 million for melanoma research.  We are thankful to L’Oréal Paris, Bergdorf Goodman, Eric Javits and Double Cross Vodka for their contributions to the event.

Wednesday, MRA attended the Shade Foundation poster contest where K-8 children created posters on sun safety.  The event drove home the importance of educating the young on the dangers of UV rays and how sun protection is essential for everyone’s well-being.  Here’s a picture of one of the winners!

Shade Foundation winner

Friday, Wendy Selig appeared on FOX News to discuss the Sunscreen Innovation Act and how the US needs the best sunscreen products to prevent melanoma.  We also celebrated national Don’t Fry Day, spreading the message of sun safety as a timely reminder on the Friday before Memorial Day weekend.  Sun protection is especially important during the summer when people will be spending more time outdoors, so please stay sun safe.

Finally, here are a few highlights from the melanoma news this week:

Minnesota becomes 8th state to ban indoor tanning for minors via NY Daily News

Don’t Fry Day: A Reminder to Protect Your Skin via Huffington Post

A powerful story from melanoma survivor Michelle LeBlanc via Close Up With Elizabeth Grady

Skin cancer increases risk of other cancers via Health Blog

 

The MRA Policy Pulse

DC

With our office based in Washington, DC, we have numerous opportunities to contribute to efforts aimed at policy-makers urging them to ensure better outcomes for melanoma patients and those at risk.  Whether we are advocating for increased NIH funding, participating in meetings on Capitol Hill, or highlighting the need for prevention strategies and innovative new treatments, we are always working toward the day when no one suffers or dies from melanoma.

Here are some highlights from our latest policy initiatives:

  • MRA is collaborating with the Department of Health and Human Services, the CDC and other key stakeholders to engage the Surgeon General’s Office in a Melanoma Public Health strategy via a Call to Action. We are lending our expertise to establish a strong rationale for the many steps that need to be undertaken to defeat melanoma.
  • MRA recently became a member of the Public Access to SunScreens (PASS) Coalition, whose mission is to work collaboratively with the FDA, Congress, the White House, health providers, consumer organizations and stakeholders to establish a regulatory pathway for timely pre-market review of new, safe and effective sunscreen ingredients.  PASS has proposed legislation, which includes expedited review of the backlog of PASS Logosunscreen applications and establishes a new process that allows future sunscreen applications to receive a decision within one year of submission.  MRA participates in Hill meetings with the PASS Coalition, urging members of Congress to support this legislation.
  • In May, the FDA released draft regulations that will require tanning beds and sunlamps to display stronger warning labels, including a recommendation that people under the age of 18 abstain from using these devices.  The proposed reclassification moves tanning beds from Class 1 (low risk) to Class 2 (moderate risk) devices.  While this is a great first step, MRA plans to continue working with the FDA and other stakeholders to restrict the use of these dangerous devices.  MRA will submit comments to the FDA in the coming weeks applauding them for their efforts and encouraging the department to institute additional regulations that will completely restrict minors from the use and purchase of indoor tanning devices.Tanning Lamps
  • MRA is working with the Melanoma Research Foundation to request $10 million for a melanoma research program administered by the Department of Defense’s Congressionally Directed Medical Research Program in 2014. With hundreds of thousands of U.S. Army, National Guard, Coast Guard, Air Force and Marine personnel having served in the Middle East over the past decade, where the intensity of sun exposure is great, there is a potential for heightened long-term risk of melanoma incidence and mortality in our military and veteran population.  MRA met with Senators on Capitol Hill to seek support for this funding in the Senate Defense Appropriations bill.

Here at MRA, we continue to advocate for policy changes to accelerate progress in the melanoma field.  We frequently work with senior policymakers at the Department of Health and Human Services, the Food and Drug Administration, and Congress to offer constructive solutions and focus resources and attention on defeating melanoma.

We will keep you updated on any future developments surrounding these issues!